Questionnaire Summary
A/ YOUR DIAGNOSIS:
1. Describe in detail the type of NHL you have?
Low Grade
| .indolent, small cell cleaved, follicular |
| .low grade, follicular, primarily small cleaved, stage 4 |
| .small cleaved follicular stage 11-A |
| .low grade, mixed, follicular, stage 1B - transformed to Int. diffuse small-cleaved stage 4 |
| .indolent, small cleaved, stage 1 |
| .low grade, small cell, cleronic, stage 4, aggressive |
| .low grade |
| .low grade, small, follicular, B cell (x6) |
| .low grade, mixed, follicular (x3) |
| .low grade, marginal zone |
| .low grade, small cell, diffuse well differentiated |
| .low grade, follicular mixed, small and large B cell, stage 2 or 3 |
| .low grade, follicular mixed, large & small B cell |
| .low grade, follicular, small cleaved, stage 3 or 4 |
| .low grade, stage 4 |
| .follicular mixed, stage 4 |
| .follicular, mixed, small cleaved & large, stage 4 |
| .low grade, follicular, small cleaved, B cell (x3) |
| .marginal zone lymphoma, low grade, stage 2 or 3 |
| .malt, low grade, monocytoid, B cell, stage 4, primary site breast also bone marrow |
| .follicular, small cleaved, stage 4 |
| .low grade, follicular, small cleaved |
| .low grade, CLL, stage 4 |
| .low grade, follicular, non-cleaved centrocytic, centroblastic, well differentiated |
| .follicular, follicular, CD20 |
| .low grade, small cleaved, stage 4 |
| .malt-indolent B cell with extensive plasmacytoid features |
| .low grade, follicular, small cleaved, stage 4 |
| .follicular, small cell |
| .follicular, small, B cell cleaved |
| .indolent, follicular, small cleaved, stage 4 |
Intermediate Grade
| .intermediate grade, diffuse mixed, grade 4 |
| .intermediate diffuse, small and large |
| .intermediate high grade, mediastinal, B cell |
| .intermediate grade, anaplastic large, B cell |
| .intermediate grade, B cell (x2) |
High Grade
| .aggressive, large diffuse, B cell |
| .high grade, diffuse, large B cell, stage 2B |
| .aggressive, diffuse B cell, stage 1 |
| .large B cell mediastinal, stage 11B or large B cell aggressive stage 4B |
| .aggressive, large B cell, diffuse/immunoblastic, stage 4 |
Other
| .transformed large B cell diffuse |
| .mixed follicular with focal diffuse areas CD10 + CD5 - monoclonal b cell population |
| .waldenstroms macroglobulinemia |
| .SLL/CLL |
| .lymphoplasmacytoid stage 4A |
| .lymphoplasmacytoid immunoctoma with assoc. amyleidosis |
| .lymphoblasic t-cell |
2. Is there any organ involvement?
| Yes - 11 |
| No - 48 |
3. If Yes, what organ(s) are involved?
| Breast |
| Liver (x3) |
| Spleen (x5) |
4. Is there bone marrow involvement?
| Yes - 25 |
| No - 29 |
5. What is the date you were diagnosed?
| 4/83 | 3/93 | 6/96 | 7/97 (x2) | 3/98 | 12/98 (x3) |
| 2/86 | 7/94 | 9/96 (x2) | 8/97 | 4/98 | 11/98 |
| 12/90 | 1/95 | 10/96 (x3) | 9/97 (x2) | 5/98 | 3/99 (x3) |
| 7/92 | 4/95 | 1/97 (x2) | 10/97 | 6/98 (x2) | 4/99 (x3) |
| 11/92 | 7/95 (x2) | 2/97 | 11/97 | 7/98 | 5/99 |
| 1/93 | 10/95 | 5/97 | 12/97 | 9/98 | |
| 2/93 | 11/95 (x2) | 6/97 | 2/98 | 10/98 |
6. What was your age at diagnosis?
| 9 | 36 | 43 (x2) | 50 | 57 | 64 (x2) |
| 30 | 37 | 45 (x2) | 51 (x6) | 58 (x4) | 65 |
| 31 | 39 | 46 (x2) | 52 (x2) | 59 | 69 |
| 33 (x2) | 40 (x3) | 47 (x2) | 53 | 60 | |
| 34 | 41 (x2) | 48 (x2) | 54 (x5) | 62 | |
| 35 (x3) | 42 | 49 | 55 (x2) | 63 |
7. After your diagnosis what was recommended for you?
| Treatment - 32 |
| Watch and Wait - 28 |
8. What type(s) of treatment did you receive?
| Chemo (x3) | Radiation alone (x7) | Epoch |
| Chop (x6) | Prednisone | Chemo + Radiation (x2) |
| CVP (x9) | Excision of node | Fludarabine & Mitoxantrone |
| Rituxan (x5) | Fludarabine (x2) | Chlorambucil/Prednisone |
| Interferon (x2) | PSCT (x2) | Leukeran/Prednisone |
| Chop/Rituxan | Eshap | |
| Leukeran | DHAP |
9. To-date are you still in watch & wait?
| Yes - 32 |
| No - 23 |
10. If you are still in watch and wait how would you describe your general health?
| Excellent - 14 |
| Good - 20 |
| Fair - 9 |
| Poor - 0 |
11. If you are no longer in watch & wait, how long were you in watch and wait before treatment?
| 4 months | 4.5 years | 15 years |
| 15 months | 7 years | |
| 2 years (x2) | 11 years |
B/ GENERAL CHARACTERISTICS:
1. Are you male or female?
| Male - 20 |
| Female - 40 |
2. What is your blood type?
| Unknown (x6) | A+ (x15) | O (x4) |
| A (x3) | AB+ (x2) | O+ (x18) |
| A- (x3) | B+ (x2) | O- (x2) |
3. What is you general energy level?
| High - 12 |
| Average - 27 |
| Low - 21 |
4. What is your weight for your body type?
| Below Average - 6 |
| Average - 30 |
| Above average - 22 |
5. How is your libido?
| High - 5 |
| Average - 22 |
| Low - 30 |
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